rare disease

Rare New England Conference 2017: Patient- and Family-Centered Care - Improving Care through Mutually Beneficial Partnerships 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Workshop presenter is Amy Cohen, PhD, BCBA, CLSSGB, PMP Patient- and Family-Centered Care Program Manager.

Rare New England Conference 2017: Patient Story - How a Newborn Screening Saved Our Son's Life 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Presented by Allison Wood.

Rare New England Conference 2017: Vermont Family Network - Family-to-Family Support, Information, and Connections 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Workshop presenters are Joanne Wechsler and Connie Simendinger, Vermont Family Network.

Rare New England Conference 2017: How to Navigate the Insurance World When You Have a Rare Disease 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington Vermont. Workshop presenter is Betty Morse, Health Services Training & Technical Assistance Specialist, Children with Special Health Needs (CSHN), Vermont Department of Health.

Rare New England Conference 2017: Promoting Better Life Quality with Helpful Resources 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Workshop panel includes representatives from Panel, Angel Flights, Vermont Therapy Dogs, and the Muscular Dystrophy Association (MDA).

Rare New England Conference 2017: Managing a Complex Disease in a Complex Health Care System 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Workshop presenter is Mark Korson, MD, Genetic Metabolic Center for Education, Rare New England Board of Directors.

Rare New England Conference 2017: Navigating the School System to Get What You Need 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Workshop presenter is Leah Burke, MD, Director of the Clinical Genetics Program at The University of Vermont Medical Center.

Rare New England Conference 2017: Genetic and Genomic Testing 101 09/23/2017

Presented as part of the Rare New England Conference held on 9/23/17 in Burlington, Vermont. Workshop presenter is Ben Solomon, MD, FACMG, and Managing Director of GeneDx.

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